5
4. Shared Decision-Making
COR LOE
Recommendation
1 B-NR
1. For patients with HCM or at risk for HCM, shared
decision-making is recommended in developing a plan of
care (including, but not limited to, decisions regarding
genetic evaluation, activity, lifestyle, and therapy choices) that
includes a full disclosure of the risks, benefits, and anticipated
outcomes of all options, as well the opportunity for the
patient and caregivers to express their goals and concerns.
5. Multidisciplinary HCM Centers
COR LOE
Recommendations
1 C-LD
1. In patients with HCM in whom SRT is indicated,
the procedure should be performed at experienced
centers (comprehensive or primary HCM centers) with
demonstrated excellence in clinical outcomes for these
procedures (Table 3, Table 4).
2a C-LD
2. In patients with HCM, consultation with or referral to a
comprehensive or primary HCM center is reasonable to aid
in complex disease-related management decisions (Table 3).
Diagnosis
Note: The numbering of the following tables and figures may differ from that of
the Clinical Practice Guideline.
Colors in tables and figures correspond to Class of Recommendations and
Level of Evidence tables on pages 42– 43.