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Table 14. QoL Tools Used in IEI
Tools Description
Short-form 36 (SF-36)
version 2.0
Generic measure of health-related QoL with 8 domains.
Not specific for any disease or population.
Child Health
Questionnaire Parent Form
50 (CHQ-PF50)
Generic measure of health-related QoL with 15 domains.
Specifically designed for children 5–13 y of age.
Pediatric QoL Inventory
(PedsQL 4.0)
23-item instrument for children ages 2–18 y. Scales are
multidimensional for child self-report and parent proxy-
report scales for healthy and acute and chronic health
conditions.
Life Quality Index (LQI) Measure of treatment preferences relative to
enhancement of life with 4 domains.
Used in patients with IEI receiving IgG.
General health
questionnaire (GHQ-12)
12-item questionnaire designed to measure psychological
stress and to detect depression and anxiety.
Treatment Satisfaction
Questionnaire for
Medication (TSQM)
Generic measure of treatment satisfaction with 4
domains.
PROMIS-29 Generic measure of QoL and was used to assess fatigue in
patients with CVID.
CVID-QoL 32-item validated HR-QOL instrument for adult
patients with CVID
PADQOL-16 16-item validated HR-QOL instrument for adult
patients with primary antibody deficiency (PAD)
